64 replies to this topic

[vivolenta]

Not-for-Profit CFS and CFS-related Organizations and Research Foundation (United States)
American Lyme Disease Foundation – www.aldf.com
CFIDS Association of America - http://www.cfids.org
CFIDS Report - http://www.cfidsreport.com/
Co-Cure ME/CFS and Fibromyalgia - http://www.co-cure.org/
HHV-6 Foundation - http://www.hhv-6foundation.org
Institute for Molecular Medicine - http://www.immed.org/
National Alliance for Myalgic Encephalomyelitis http://www.name-us.org/
National CFIDS Foundation - http://www.NCF-NET.org
National Dysautonomia Research Foundation - http://www.ndrf.org/
National Fibromyalgia Association - http://www.fmaware.org
National Fibromyalgia Research Association - http://www.nfra.net/Reslist.htm
Pain Research Center at University of Utah - http://www.painresearch.utah.edu/
Patient Alliance for Neuroendocrineimmune Disorders
Organization for Research and Advocacy - http://www.pandoranet.info/
Organization for Fatigue and Fibromyalgia Education and Research -
http://www.offerutah.org/
Not-for-Profit CFS and CFS-related Organizations and Research Foundation (Canada, U.K. and Australia)
Action for ME - http://www.afme.org.uk/
FM-CFS Canada - http://fm-cfs.ca/support.html
Invest in ME - http://www.investinme.org/
ME/CFS Association of Australia Limited - http://www.mecfs.org.au/index.html
ME/CFS Society (SA) Inc. (Australia, New Zealand, U.K.) - http://www.sacfs.asn.au/links.htm
MERGE (United Kingdom) - http://www.meresearch.org.uk/
National ME/FM Action Network (Canada) - http://www.mefmaction.net
Not-for-Profit CFS and CFS-related Organizations and Research Foundation (International)
CFS Italia (Italy) - http://www.cfsitalia...hp?showtopic=40
CFS Network Japan (Japanese Association for Chronic Fatigue Syndrome) - http://www.bekkoame....cfs-E/index.htm
Fatigatio (Germany) - http://www.fatigatio.de/
International Herpes Management Forum – www.ihmf.org
Intersitial Cystitis Association - http://www.ichelp.com/
Japanese Society of Fatigue Science - http://hirougakkai.com/
ME-NET (multilingual/international) - http://www.me-net.dds.nl/index.html
ME Platform (Netherlands) - http://www.me-platform.vuurwerk.nl/
Wikipedia on Irritable Bowel Syndrome -http://en.wikipedia.org/wiki/Irritable_bowel_syndrome
Specialty Laboratories
RED Laboratories (Belgium) - http://www.redlabora....be/2/index.php
RED Laboratories (United States) - www.redlabsusa.com
Immunosciences Lab - http://www.immuno-sci-lab.com
Medical Specialties related to CFS

American Academy of Sleep Medicine - http://www.aasmnet.org/

AASM Accredited Sleep Centers - http://www.sleepcenters.org/

American Academy of Pain Medicine - http://www.painmed.org/

American Association of Immunologists - http://www.aai.org/

Infectious Diseases Society of America – http://www.idsociety.org/

State and Regional Infectious Diseases Societies (U.S.) - www.idsociety.org/Content/NavigationMenu/About_IDSA/...
American Neurological Association - http://www.aneuroa.org/

American Academy of Neurology - http://www.aan.com/professionals/

American College of Rheumatology - http://www.rheumatology.org/

American Psychiatric Association - http://www.psych.org/psych_pract/
AmericanCollege of Gastroenterology - http://www.acg.gi.org/
World Gastroenterology Organization - http://www.worldgastroenterology.org/

CFS Medical Literature
IACFS/ME Pediatric Case Definition
http://www.aacfs.org/p/271.html

National Library of Medicine (PubMed medical literature search) - http://www.ncbi.nlm.....fcgi?db=PubMed
2003 Carruthers Canadian Myalgic Encephalomyelities / Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols - http://fm-cfs.ca/CFS-Protocol.pdf
2002 New Jersey Consensus Manual for the Primary Care and Treatment of Chronic Fatigue Syndrome - http://www.njcfsa.org/Manual.pdf
2003 Trans-NIH Working Group Report on Neuroimmune Mechanisms and CFS – http://orwh.od.nih.g...une03Report.pdf
2003 Fibromyalgia Syndrome: Canadian Clinical Working Case Definition, Diagnostic and Treatment Protocols, A Consensus Document - http://fm-cfs.ca/FM-...nes-Journal.pdf
2005 Myalgic Encephalomyelitis / Chronic Fatigue Syndrome: A Clinical Case Definition and Guidelines for Medical Practitioners, An Overview of the Canadian Consensus Document - http://fm-cfs.ca/me_overview.pdf
2005 Fibromyalgia Syndrome: A Clinical Case Definition and Guidelines for Medical Practitioners, An Overview of the Canadian Consensus Document - http://fm-cfs.ca/fms_overview.pdf
U.S. Government Agency CFS Resources

Department of Health and Human Services, Center for Disease Control and Prevention (CDC) - http://www.cdc.gov/n...d/diseases/cfs/
NIH Roadmap for Medical Research - http://nihroadmap.nih.gov/

Trans-NIH Working Group for Research on CFS - http://orwh.od.nih.gov/cfs.html

Trans-NIH Working Group Report on Neuro-immune Mechanisms and CFS - http://orwh.od.nih.g...une03Report.pdf

NIH Guide to Healthy Sleep (National Heart, Lung and Blood Institute) - http://www.nhlbi.nih...althy_sleep.pdf
United States Department of Health and Human Services, Chronic Fatigue Syndrome Advisory Committee (transcripts of meetings) - http://www.hhs.gov/a...ranscripts.html
National Institute for Allergy and Infectious Disease
http://www.niaid.nih...tsheets/cfs.htm
Medline Plus - http://www.nlm.nih.g...uesyndrome.html
Disability

Americans with Disabilities Act - http://www.usdoj.gov...ada/adahom1.htm

US Department of Justice Guide to Disability Rights Laws - http://www.usdoj.gov...htm#anchor66477
Social Security Administration Ruling on CFS Disability -http://www.cfids-me.org/disinissues/ssa0499.html
SSA Disability Report Form Guide - http://www.ssa.gov/disability/3368/

Martindale Hubbell Lawyer Locator - http://www.martindal...ch_advanced.xml
Massachusetts CFIDS Association Disability Handbook -
http://www.masscfids...ility_book.html
The Disability Benefits Information Website (United States and Canada) - http://www.cfids-me.org/disinissues/
Gulf War Illnesses
U.S. Department of Veterans Affairs (GWI) - http://www1.va.gov/gulfwar/
U.S. Department of Defense (GulfLINK) - http://www.gulflink.osd.mil/
Support Groups
US CDC Support Group Listing
http://www.cdc.gov/cfs/cfssupport.htm
Immune Support Support Group Listing -
http://www.ImmuneSup...m/supportgroups

Edited by vivolenta, 03 October 2007 - 09:42:27.

[vivolenta]

i link sopra tra cui cfsitalia.it - forum li ho trovati qui
http://www.aacfs.org/p/283.html

[vivolenta]

____________________________________

associazione italiana neuroimmunologia:

http://www.aini.it/index.php

Edited by vivolenta, 18 October 2007 - 21:23:32.

[vivolenta]

http://www.eu-patient.eu/

http://www.eu-patien...e2007/index.php

[joseph1951]

Not-for-Profit CFS and CFS-related Organizations and Research Foundation (United States)........................................................................................................................

VIVOLENTA..SEI BRAVISSIMA!
CIAO

[vivolenta]

eccone un altro,ma ancora non l'ho visionato
http://phoenix-cfs.o...annelopathy.htm

[joseph1951]

eccone un altro,ma ancora non l'ho visionato
http://phoenix-cfs.o...annelopathy.htm

Cara Vivo,

Conosco questo sito. Vale la pena di studiarlo molto attentamente. Nel sito ci sono anche i protocolli terapeutici di Cheney

Salutoni (e continau ad essere arrabiata)

Ps cerca anche Eurolyme

[vivolenta]

ME agenda UK Myalgic encephalomyelitis -
WHO ICD-10:G93,3 political issues http://meagenda.wordpress.com/

http://meagenda.word...ice-guidelines/

Legal Countdown to Judicial Review CFS / ME NICE Guidelines
Categories
25% ME Group Adjournment Debate AfME, Action for ME
APPG on ME APPG on ME Agenda APPG on ME Minutes
AYME BRAME Canadian Criteria
CBT CFS Clinics CFS/ME Collaborative Conference
DoH Dr Ian Gibson DWP
Family Courts FINE Trial Gibson Inquiry
Gibson Report GMC GSRME
GWS Institute of Psychiatry Biomedical Research Centre
Judicial Review Justice for Families Lightning Process
ME Association ME in BMJ ME in children
ME in Parliament ME in the media ME in videos
ME Observatory MRC NHS Plus
NICE NICE CFS/ME guideline Professor Findley
Professor Peter White RiME Simon Wessely
The Orchard Centre Brian Ashworth
Uncategorized UnumProvident, UNUM WHO




In questa azione la Plaintiff chiede alla Corte di esigere la convenuta a pagare a lungo termine per la disabilità Plaintiff, per il periodo da maggio 1990 a oggi e per il prossimo futuro
http://www.nightinga...=LIAlbertaCourt
Action 9303-22591
In the Court of Queen's Bench of Alberta
Judicial District of Edmonton

Edited by vivolenta, 25 November 2007 - 12:38:40.

[vivolenta]

http://www.25megroup.org/

SUPPORT GROUP AND NATIONAL CHARITY FOR THE
SEVERELY AFFECTED M.E. SUFFERER and their carers

Il 25% ME è un gruppo unico a livello nazionale organizzazione caritativa gestito interamente da volontari (la maggior parte dei quali sono gravemente colpite dalla ME), è stato istituito per offrire servizi di supporto a quelle gravemente colpite dalla ME (Myalgic Encephalomyelitis), e dei loro assistenti. Il gruppo è anche sostenuta da due a tempo parziale, amministrazione del personale. Offriamo una vasta gamma di servizi per le persone affette da gravi ME molti dei quali sono praticamente a casa e / o bedbound. (Si prega di fare riferimento al "Chi siamo" per maggiori dettagli e come servizio ad unirsi al gruppo).
Che cosa è grave ME?
. ME è stato classificato dalla Organizzazione Mondiale della Sanità (ICD 10 G 93.3) come una malattia neurologica che interessano circa 200000 persone all'interno del Regno Unito. Di questo numero, circa il 25% di coloro che sono colpiti andrà a sviluppare gravi ME, che è estremamente debilitatin * g di malattia, a volte per la durata di anni, in alcuni casi, addirittura decenni, rendendo spesso il soggetto completamente a casa, in sedia a rotelle e bedbound e dipendenti Su di assistenti per il loro esigenze quotidiane. Il Chief Medical Officer della Relazione sul tema della CFS / ME (sindrome di fatica cronica / Myalgic Encephalomyelitis) rilasciata nel gennaio del 2002 riconosce che "CFS / ME dovrebbe essere classificato come una condizione cronica con effetti a lungo termine Sulla salute, a fianco di altre malattie come la sclerosi multipla e neurone motore malattia ". Ad oggi non è noto alcun test diagnostico medico specifico per determinare o confermare una corretta diagnosi, né esiste alcun trattamento specifico per questa condizione.
La variabile sintomi manifestati da molti malati gravi ME possono includere:
Problemi visivi ¨ vocale / muscolare limitazioni ¨ generale debolezza cronica delle arti ¨ problemi cognitivi quali la perdita di memoria e difficoltà di concentrazione ¨ problemi con equilibrio e di controllo motore ammenda ¨ dolore muscolare malessere ¨ ¨ ¨ ipersensibilità temperatura disturbo del sonno e sintomi cardiovascolari ¨ ¨ ¨ disturbi digestivi Disturbi neurologici

Edited by vivolenta, 27 May 2008 - 15:41:50.

[vivolenta]

http://www.menwithfibro.com/home.html
Welcome to the “men with fibromyalgia” website. The site was created for men with fibromyalgia, as a “home away from home” for all men with fibromyalgia. And for those who happen to have a man with fibro in their lives.
The site is not exclusively a male only website, but one must bear in mind, it is dedicated to the issue of men with fibro. Women are more than welcome.

[vivolenta]

The Environmental Illness Resource is an information resource and interactive community site for people suffering from a range of chronic illnesses which are poorly understood and for which there is currently very limited healthcare available. We have chosen to group these conditions under the title of 'Environmental Illnesses' and they include chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), and allergies. Detailed descriptions of all the illnesses we cover can be found in the 'Illness Overviews' menu.

http://www.ei-resource.org/

http://www2.rpa.net/...dall/index.html

http://www2.rpa.net/...dall/cfids.html Myofascial Pain Syndrome


http://www.med-help.net/Page20.html

http://www.redlabsusa.com/cfs/

Edited by vivolenta, 22 December 2007 - 15:54:27.

[vivolenta]

http://www.nmec.org.uk/whatisme.html
The National ME Centre is based in the Disablement Services Centre (DSC) at the Old Harold Wood Hospital Site, Romford, Essex.
We recommend and endorse the Canadian Consensus Document. We regard it as an extremely important contribution to understanding the physical basis of the condition. Future research should be directed to further defining the pathophysiology of the condition together with identifying the sub groups, which undoubtedly exist, with the illness complex currently termed ME/CFS."
Canadian Consensus Document (Bruce M. Carruthers, Majorie I. van de Sande) is recommended and endorsed by Professor L J Findley TD KLJ MD FRCP FACP Clinical Director, The National ME Centre and Dr. Terry Mitchell MA MD FRCPath retired Honorary Consultant The National ME Centre as follows:

Edited by vivolenta, 27 May 2008 - 15:43:34.

[vivolenta]

M.E. India
http://www.meindia.org/


…………………………….................
forum:
germania: http://www.me-cvsver...wforum.php?f=23

spagna: http://fibro.mundofo...0b9d4ae4d514c08

http://plataformafmy...o.com/index.htm

…………………………….

associazioni
associazione messico: http://www.fibromial...ave_Elemento=34
associazione argentina: http://www.aasfc.org...rensa/Index.htm


america del sud:
Ameffac: Asociación Mexicana de Fibromialgia y Síndrome de Fátiga Crónica A.C
Apartado Postal # 962 Col.del Valle.
C.P.66250 Garza García,N.L
México.

www.ameffac.org info@ameffac.org apoyo@ameffac.org
(81) 83-03-25-98




Portogallo
Grupo De Auto-Ajuda Sindroma De Fadiga Cronica e Fibromialgia
Local das reuniöes: Av. De Ceuta-Norte, 13 – loja 2
1300 – 125 LISBOA, PORTUGAL

http://www.gasfcfibro.no.sapo.pt gasfcfibro@sapo.pt




ECSI - Enfermedades Cronicas Socialmente Invisibles - Argentina
http://www.arbitrio.com.ar
AMEFFAC - Asociación Mexicana de Fibromialgia y Síndrome de Fatiga Crónica - México
http://www.ameffac.org/pagina.htm
Página Colombiana de la Tathcher - Colombia
http://www.ebmcolombia.org/fatiga
Charla SFC - Adrian Rossiter - España
http://www.charlasfc.uklinux.net
ACSFCEM - Asociación Catalana Síndrome Fatiga Cronica Encefalomielitis Miálgica - España
http://www.acsfcem.org
Síndroma de Dadiga Crónica e Fibromialgia - Portugal
http://gasfcfibro.no.sapo.pt
Association Francaise de Syndrome de Fatique Chronique et de Fibromyalgie - Francia
http://asso.nordnet.fr/cfs-spid/
Dansk CFS Information - Dinamarca
http://www.cfs.inform.dk
ANZMES - Nueva Zelanda
http://anzmes.org

Edited by vivolenta, 27 February 2008 - 18:02:26.

[vivolenta]

SITO MOOLTO RICCO peccato sia in tedesco..o è olandese???
forse qualcuno però lo capisce..
http://me.startpagina.nl/
ME/CVS (Myalgische Encefalomyelitis cq Encefalopathie / Chronisch Vermoeidheids Syndroom)

centro di ricerche cvs ( sarebbe cfs per noi..) ad amsterdam
http://www.cfscentrumamsterdam.nl/
http://www.cfscentru...tro English.htm in inglese
info@cvscentrum.nl

........It is also quite different from depression. The difference is obvious in the biochemistry of CFS: low acylcarnitines, high free-cortisol in overnight urine and high prolactin in the Buspirone® test..

We study the causes of CFS, in the past or present and the symptoms in the body and brain.

Our main attention is on the study of the relation of biochemical failure in the brain and body and symptoms of chronic fatigue syndrome. We have specialized in the study of the Hippocampus, a brain-organ that behaves as a central computer-chip. In several CFS-like diseases a malfunction of this organ was demonstrated.

At this moment we do studies in patients on serotonin and acetylcholine, two communicators in the brain.

Other investigators are researching other ends of the knot. We probably will meet somewhere.

If you think you might be a victim of chronic fatigue syndrome and would like medical advice, submit your question to the CFS centrum Amsterdam.
.ecceecce.....

Edited by vivolenta, 28 February 2008 - 19:14:45.

[joseph1951]

http://www.25megroup.org/

SUPPORT GROUP AND NATIONAL CHARITY FOR THE
SEVERELY AFFECTED M.E. SUFFERER and their carers

Il 25% ME è un gruppo unico a livello nazionale organizzazione caritativa gestito interamente da volontari (la maggior parte dei quali sono gravemente colpite dalla ME), è stato istituito per offrire servizi

E' l'associazioen del gruppo dei giovani che ha una disabilita' del 75%. funzionano la 25% delle loro capacita' precendenti. E' unsitomolto buono

[vivolenta]

http://www.cfs-heali...tic-markers.htm

Diagnostic markers
There are in fact a good number of scientific markers of abnormalities in ME-CFIDS-CFS!
segnalazione by joseph
: Protocollo internazionale di alcuni esamini da fare inerenti la ricerca dei marker indicatori della ME/CFS.Questi esami sono il minino diindagine cliniché si si dovrebbero fare , ed essi non escludono altri esami, in base alle altre patolgie individuali, che sono o possono essere presenti (co-infezioni croniche virali e/o batteriche, cisti cerebrali e non, sbilanci ormonali notevoli, hashimoto, fibromi, e via di seguito, poi altre espressioni, cosiddette “malattie autoimmuni”, quail diabete, artrite remuatoide, SLA)

Edited by vivolenta, 27 May 2008 - 15:45:08.

[vivolenta]

EUROPA
associazioni- forum- siti informativi- cliniche ME CFS FM



SPAGNA: SFC-Spanish sindrome fatiga crónica (chronic fatigue syndrome).

COORDINA spagna associazioni: http://www.coordinad...fc.org/index.hm
www.afita.info
http://www.fundacionfatiga.org/ Centros de interés para el diagnóstico
http://iier.isciii.e...asp?cod_enf=540
http://www.institutf.../asistencia.htm

http://todosunidos.blogs.terra.es/
http://montcat.space...?&_c02_owner=1:
http://www.fibromial...co_multiple_mas carillas.html
FIBROFATIGA UNIDOS: http://fibrofatiga-unidos.info/
http://www.lasbarricadas.net/fibro/
http://fibro.mundofo...0b9d4ae4d514c08

-----------------------------------------------------------------------
GRAN CANARIA.
http://www.afigranca.org/
--------------------------------------------------------------------------------------------
FRANCIA ( SFC- SYNDROME DE FATIGUE CHRONIQUE ET DE FIBROMYALGIE )
http://asso.nordnet.fr/cfs-spid/
Présidente Mme Annick LALANNE Résidence Porte de Gand
9, rue du Pont à Raisnes 59800 LILLE Tél. : 03 20 74 89 02 Email : cfs-spid-asso@nordnet.fr
--------------------------------------------------
SVEZIA
http://me-cfs.se/
http://www.rme.nu/ Skicka e-post till webmaster@rme.nu med frågor eller kommentarer om den här
http://www.me-info.nu/
FORUM: http://me.forum24.se/
-----------------------------------
NORVEGIA
http://www.me-forening.no/
http://www.me-foreni...phpfo/index.php FORUM
Mine telefonnummer er: 6715 0481 / 4784 4671 .
Du kan også nå meg på e-post: metteschoyen@gmail.comDenne e-post adressen er beskyttet fra spam bots, du trenger Javascript slått på for å se det
http://www.regjering....html?id=486275 Nasjonalt kompetansenettverk for ME åpnet
-------------------------------------------
DANIMARCA (Danish kronisk udmattelsessyndrom (chronic fatigue syndrome), kronisk udmatning (chronic fatigue syndrome), kronisk træthed (chronic fatigue syndrome).)

http://www.me-cfs.dk/ ME/CFS Foreningen
Rådhustorvet 1, 1. sal 3520 Farum Telefon:
Giro:. 44 95 97 00
(mandag og onsdag kl. 12-14) 626 1752
E-mail: mail@me-cfs.dk
http://meforum.diskusjonsforum.no/ FORUM
http://www.mesite.dk/ in inglese
http://www.kommunalehandicapraad.dk/
http://www.kronisktraethedssyndrom.dk/
--------------------------------------
OLANDA ( CVS- CHRONISCH VERMOEIDHEIDSSYNDROOM ) Dutch
chronisch vermoeidheidssyndroom (chronic fatigue syndrome, myalgic encephalomyelitis).
http://www.nkcv.org/ Op de website van het Nijmeegs Kenniscentrum Chronische Vermoeidheid
http://www.mecvs.net/
http://www.umcn.nl/patient/ Kenniscentrum Chronische Vermoeidheid
http://www.dhost.inf...groep/index.htm FORUM
http://www.me-cvsver...ieuws/index.php
http://www.me-cvs.nl...php?pageid=6879 DOCUMENTATIECENTRUM
http://www.me-cvs-stichting.nl/
http://www.medivera.nl/ http://www.steungroep.nl/

http://www.cfscentru...a...02 2 16.htm


http://chronische-ve...syndroom.1a.php
http://www.fonteine.com/me_cvs.html

forum: http://groups.msn.co...r=0&ID_Last=321
http://www.cvs-online.nl/

---------------------------------------------------------------
BELGIO
http://www.me-cvs.be/

http://www.cfs-clinic.com/ CLINIC BRUXELLES
http://www.medinet.be/print.asp?ID=261
----------------------------
INGHILTERRA
http://www.25megroup.org/
http://www.theoneclickgroup.co.uk/
http://www.meassociation.org.uk/
http://www.afme.org.uk/


http://blog.senioren...atum=1186351200


IRLANDAhttp://www.activelink.ie/irish/organisation.php?id=634 http://www.activelin...tion.php?id=634
Write to: PO Box 3075, Dublin 2. Tel: (01) 2350965 . Fax: (01) 4968360. Email: info@irishmecfs.org.

http://www.imet.ie/ info@imet.ie
http://www.imet.ie/i...or_ireland.html THE IRISH POSITION- A CLINICAL FOR IRELAND? THE MEDICAL CHAMPION-TRAVELLING FOR TREATMENT-DISABILITY PAYMENT
-----------------------

GERMANIA German chronische Ermuedung (chronic fatigue syndrome) Chronisches Erschöpfungssyndrom, CFS

http://dgmcs.de/cfs.htm
http://www.me-platform.vuurwerk.nl/
http://kunden.www-po...cfs+mcs-berlin/
http://www.fatigatio.de/ Tel.: 030 - 310... Fax: 030 - 310 18 89 - 20
E-Mail: info(at)fatigatio.de Für Erstinformation: kontakt(at)fatigatio.de
http://www.cfs-treffpunkt.de/index.php FORUM IN TEDESCO
http://www.cfs-portal.de/
http://www.cfs-board.de/index.html
http://www.me-cvs.nl...php?pageid=6879 germania versione inglese
forum germania: http://www.me-cvsver...wforum.php?f=23
http://www.cfs-board...forum/index.php FORUM in tedesco o austriaco????


---------------------------------------
SVIZZERA:http://www.verein-cfs.ch/ IN TEDESCO E FRANCESE Verein CFS Schweiz http://www.verein-cfs.ch/
CH-8000 Zürich Telefon +41 78 616 96 80 E-Mail info@verein-cfs.ch Postcheck 80-42579-1
-----------------------------------------

GRECIA:Greek  χρόνια κόπωση (chronic fatigue syndrome).Μυαλγική Εγκεφαλοπάθεια ( ME) questo manco per intuito capisco...
----------------------------------------------
MALTA [url="http://www.mesufferersmalta.org/"]http://www.mesufferersmalta.org/

Edited by vivolenta, 08 May 2008 - 10:08:59.

[vivolenta]

http://www.geocities...ndamentals.html

The Medical Fundamentals of M.E.
Protect yourself - Learn about your disease - Educate your doctors.

Edited by vivolenta, 27 May 2008 - 15:46:29.

[Dolly]

Vivo, grazie per quest'ultima "infornata" di siti. Ragazzi, la diagnosi sembra possibile, visto che in Italia non è possibile averne di serie, dovremmo provare all'estero. Nessuno ha un'idea in questo senso?
Dolly (la disperata)

[vivolenta]

malattie mitocondriali: http://www.fonama.org/ fatto da un malato
scheda su sindrome da fatica cronica http://www.fonama.or...ca_cronica.html

L'esercizio aerobico può peggiorare la malattia mitocondriale http://www.fonama.or...q85aerobic.html

centri http://www.fonama.or...oni/centri.html



altro sito
malattie mitocondriali…. http://www.webalice.it/prati_50/ è il sito di una giovane donne affetta presumibilmente da una grave forma di encefalomiopatia mitocondriale unica, accompagnata da una malattia del motoneurone.
come dice lei: Tante visite specialistiche, tante terapie inutili e dannose mi sono state prescritte per diagnosi sbagliate.
L'unica cosa certa è che col passare del tempo la malattia peggiora sempre di più, anno dopo anno le forze mi abbandonano e il tempo che passo a letto è sempre più lungo.
e moltissimi di noi sanno cosa questo vuole dire…
ancora dice: A volte, colta dallo sconforto, penso che se tra gli ammalati di MITO ci fossero personaggi ricchi, potenti e famosi, forse sarebbe più facile attirare l’attenzione di politici, di professori, di medici-ricercatori, nella speranza di giungere, in breve tempo, almeno a una terapia di tamponamento.
e anche questo pensiero non è del tutto sconosciuto neppure a noi.

http://www.webalice....mazionimito.htm qui una spiegazione a mio parere di inesperta molto dettagliata su funzione ecce dei mitocondri.

http://www.webalice....alattiemito.htm malattie dei mitocondri e relativi codici di esenzione.

http://www.webalice....0/indirizzi.htm link indirizzi per chi volesse approfondire

http://www.webalice....azionivarie.htm informazioni varie ricerche


a joseph

Edited by vivolenta, 10 March 2008 - 12:42:18.

[joseph1951]

malattie mitocondriali:  http://www.fonama.org/  http://www.webalice....azionivarie.htm  informazioni varie ricerche
  a joseph

SE avete poco tempo a disposizione o poca energia vi consiglio di leggere attentamente almeno questo. Non contiene solo informazioni varie sui mitocondri, ma si parla anche del DCA e del ruolo dell'acqua ossigenata nel favorire i processi di ossidazione...ecc
Poi Mitocondri e cancro alla tiroide......
ecc.

Alcuni artcili sono di ricercatori italiani (Padova e Bologna)

Come potrete constatare le consocenze ci sono. Ma per quanto rigurda metterle in pratica.... e curare la gente...
Poi vi e' anche un interesante rticolo che ammonisce a non prendere troppi antiossidanti per esempio SOLO vitC o E. Gli antiossidanti funzionamo meglio sin asociazioni. Quindi l'aggiunta di un dato antiossidante dovrebbe essere integrata con una dieta anche ricca di tutti gli altri ossidanti.

[vivolenta]

questo mi sembra un buon questionario.... vedi allegato sotto..
magari qualche medico potrebbe anche leggerlo..si sa mai ....

lo ho trovato qui:
http://www.drlapp.net/hhcforms.htm
Download the General Information Documents plus either an Adult Questionnaire or a Child Questionnaire.
Complete these forms and mail them to Hunter-Hopkins Center.

Attached Files

•  Adult_Forms.pdf   1.08MB   114 downloads

[vivolenta]

Dr. Neubrander
http://www.drneubrander.com/
vitamina b12 alti dosaggi protocollo indicazioni info varie

Edited by vivolenta, 27 May 2008 - 15:48:07.

[vivolenta]

http://www.daninfekt.dk/news.php

link danimarca con documenti in inglese… di interessante consultazione documenti esempio:
1. randomized, placebo-controlled trial of repeated IV antibiotic therapy for Lyme encephalopathy.
Fallon BA et al. Neurology. 2007 Oct 10 [Epub ahead of print] PMID: 17928580
20080307 har jeg i kommentar tilføjet resume med karakteristik af den undersøgte population; det er forbilledlig forskningsarbejde, derfor flyttes nyheden helt op i front igen /MK
Treatment of human brucellosis: systematic review and meta-analysis of randomised controlled trials. Skalsky K et al. BMJ 2008;336;701-704;
Fri PDF-download: http://www.bmj.com/c...nt/336/7646/701

[vivolenta]

http://www.co-cure.org/Good-Doc.htm
INDEX - ME/CFS & Fibromyalgia GOOD DOCTOR LIST



http://www.nmec.org.uk./mecentre.html
The National ME Centre is based in the Disablement Services Centre (DSC) at the Old Harold Wood Hospital Site, Romford, Essex.


http://www.breakspea...es/chronic.html breakspear medical grog - uk


http://www.drlapp.net/ Charles W. Lapp, M.D. & Laura Black, M.D. 10344 Park Road, Suite 300 Charlotte, North Carolina 28210
There is HOPE and HELP for persons with CHRONIC FATIGUE SYNDROME , MYALGIC ENCEPHALOPATHY, and FIBROMYALGIA (CFS/ME/FM)...


http://www.enlander.com/main.html We are Pleased to announce the opening of a NEW Manhattan Fatigue Center at 860 Fifth Avenue, New York (cross street 67th Street)

[vivolenta]

http://cfids-cab.org/mess/

Canada

M.E.S.S. Myalgic Encephalomyelitis Support Service

Edited by vivolenta, 27 May 2008 - 15:49:40.

[vivolenta]

http://www.immed.org...s_research.html
Prof. Garth L. Nicolson
Chronic Fatigue Syndrome, Fibromyalgia Syndrome and Other Fatigue Conditions
Publications

• Metabolic Syndrome and Mitochondrial Function: Molecular Replacement and Antioxidant Supplements to Prevent Membrane Peroxidation and Restore Mitochondrial Function, Garth L. Nicolson, Journal of Cellular Biochemistry 2007; 100:in press. pdf doc

• Considerations when Undergoing Treatment for Chronic Illnesses and Autoimmune Diseases, by Prof. Garth L. Nicolson, Reprint - Intern. J. Medicine 1998; 1:123-128. Plus Supplemental Suggestions: Prof. Nicolson June 15, 2006. rtf doc

• Lipid replacement and antioxidant nutritional therapy for restoring mitochondrial function and reducing fatigue in chronic fatigue syndrome and other fatiguing illnesses, by Nicolson and Ellithorpe, Journal of Chronic Fatigue Syndrome 2006; 13(1): 57-68. pdf doc

• Lipid replacement/antioxidant therapy as an adjunct supplement to reduce the adverse effects of cancer therapy and restore mitochondrial function, by Prof. Nicolson, Pathology & Oncology Research 2005; 11(3): 139-144. pdf doc

• Evidence for Brucella spp. And Mycoplasma ssp. Co-Infections in Blood of Fatigue Syndrome Patients, by Nicolson et al., Journal of Chronic Fatigue Syndrome 2005; 12(2): 5-17. rtf doc

• Deregulation of the 2.5A synthetase RNase L antiviral pathway by Mycoplasma spp. in subsets of Chronic Fatigue Syndrome By J. Nijs et al., J. Chronic Fatigue Syndr. 2003; 11(2):37-50. rtf doc

• Multiple co-infections (Mycoplasma, Chlamydia, human herpes virus-6) in blood of chronic fatigue syndrome patients: association with signs and symptoms. By G. L. Nicolson et al., Acta Pathol. Microbiol. Immunol. Scand.(APMIS) 2003; 111: 557-566. pdf doc

• Immunophenotyping predictive of mycoplasma infection in patients with chronic fatigue Syndrome. By J. Nijs et al., J. Chronic Fatigue Syndr. 2003; 11(2): 51-70. rtf doc

• Evidence for Bacterial (Mycoplasma, Chlamydia) and Viral (HHV-6) Co-Infections in Chronic Fatigue Syndrome Patients by G.L. Nicolson et al., Journal of Chronic Fatigue Syndrome 2003; 11(2):7-20. rtf doc

• High Prevalence of Mycoplasma infections among European Chronic Fatigue Syndrome patients. By J. Nijs et al., FEMS Immunol. Med. Microbiol. 2002; 34:209-214. rtf doc

• Bacterial and Viral Co-Infections in Chronic Fatigue Syndrome (CFS/ME) Patients, by Nicolson et al., Proc. Clinical & Scientific Conference on Myalgic Encephalopathy/Chronic Fatigue Syndrome, the Practitioners Challenge, Alison Hunter Foundation, Sydney, Australia 2002. rtf doc

• Review: Immunology of Chronic Fatigue Syndrome by R. Patarca et al. J. Chronic Fatigue Syndr. 2000; 6(3/4): 69-107. rtf doc
• Examination of mycoplasmas in blood of 565 Chronic Illness patients by polymerase chain reaction. by M. Nasralla, J. Haier, N. Nicolson and G.L. Nicolson, Intern. J. Med. Biol. Environ. 2000; 28(1): 15-23. rtf doc
• Diagnosis and integrative treatment of intracellular bacterial infections in Chronic Fatigue and Fibromyalgia Syndromes, Gulf War Illness, Rheumatoid Arthritis and other chronic illnesses. by G.L. Nicolson et al., Clin. Pract. Alt. Medicine 2000; 1(2): 92-102 rtf doc
• Role of Mycoplasmal Infections in Fatigue Illnesses: Chronic Fatigue and Fibromyalgia Syndromes, Gulf War Illness and Rheumatoid Arthritis, by G.L. Nicolson et al., J. Chronic Fatigue Syndr. 2000; 6(3/4):23-39 rtf doc
• Identification And Treatment Of Chronic Infections In CFIDS, Fibromyalgia Syndrome And Rheumatoid Arthritis, by G.L. Nicolson, CFIDS Chronicle 1999; 12(3): 19-21 rtf doc
• Multiple Mycoplasmal Infections Detected in Blood of Chronic Fatigue Syndrome and Fibromyalgia Syndrome Patients, Eur. J. Clin. Microbiol. Infect. Dis. 1999 ; 18 : 859-865 rtf doc
• Mycoplasmal Infections in Chronic Illnesses: Fibromyalgia and Chronic Fatigue Syndromes, Gulf War Illness, HIV-AIDS and Rheumatoid Arthritis, by G.L. Nicolson et al., Med. Sentinel 1999; 4: 172-176 rtf doc
• The Pathogenesis and Treatment of Mycoplasmal Infections, by G.L. Nicolson et al., Antimicrob. Infect. Dis. Newsl. 1999; 17(11) : 81-88 rtf doc

• Diagnosis and Treatment of Chronic Mycoplasmal Infections in Fibromyalgia and Chronic Fatigue Syndromes: Relationship to Gulf War Illness, by G.L. Nicolson et al., Biomed. Therapy 1998; 16: 266-271 rtf doc

• Diagnosis and Treatment of Chronic Infections in Chronic Fatigue Syndrome, Fibromyalgia Syndrome and Gulf War Illness, by G.L. Nicolson and N.L. Nicolson, International Journal of Occupational Medicine, Immunology and Toxicology 1996 ; 5 : 69-78 rtf doc

*PDF files can be opened by obtaining a free copy of Adobe Acrobat from:
http://www.adobe.com.../readstep2.html


Reports
• Chronic Fatigue Syndrome Patients Subsequently Diagnosed with Lyme Disease Borrelia burgdorferi: Evidence for Mycoplasma species Co-Infections - by Garth L. Nicolson, PhD, Nancy L. Nicolson, PhD and Joerg Haier, MD, PD, Journal of Chronic Fatigue Syndrome 2008. - rtf_doc

• Recommendations for Diagnostic Testing, by Prof. Garth Nicolson, updates - 2007 rtf doc
• Co-Infections in Fibromyalgia Syndrome, Chronic Fatigue Syndrome and Other Chronic Illnesses by Prof. Garth Nicolson, Fibromyalgia Frontiers 2002; 10(3):5-9, 27-28. rtf doc
• Update on Gulf War Illnesses: Relationship to Fibromyalgia Syndrome, Chronic Fatigue Syndrome/M.E. and the Possible Role of Vaccines By Prof. Garth Nicolson, The Fibromyalgia Survivor, 2001 rtf doc
• Mycoplasmas: the Missing Link in Fatiguing Illnesses by Michael Guthrie Alternative Medicine; 2001; Sept: 60-70. rtf doc

• Research Overview: Professor Garth Nicolson's Studies and Treatments Explained By Deborah Cooper, ImmuneSupport.com Treatment & Research Library rtf doc
• CFS National Radio Program 11/21/00 with Dr. Roger G. Mazlen interviewing Prof. Garth Nicolson rtf doc
• Chronic Infections in Fibromyalgia Syndrome: Sources of Morbidity and Illness Progression. by Prof. Garth Nicolson, Fibromyalgia Survivor 2000 rtf doc
• New Treatments for Chronic Infections Found in Fibromyalgia Syndrome, Chronic Fatigue Syndrome, Rheumatoid Arthritis and Gulf War Illnesses, by Prof. Garth Nicolson, Kuwait University Faculty of Science and Medicine Newsletter, 1999 rtf doc

• The Role of Chronic Infections in the Maintenance and Progression of Chronic Fatigue Syndrome, Fibromyalgia Syndrome, Rheumatoid Arthritis, Immune Deficiency Syndromes and Gulf War Illness, by G.L. Nicolson et al., ME/CFS Congress, Sydney, Australia, 1999 rtf doc
• Identification and Treatment of Chronic Infections in CFIDS, Fibromyalgia Sydrome and Rheumatoid Arthritis Patients that Cause Morbidity and Illness Progression, by Prof. Garth Nicolson, Doctor's Educational Booklet, CFIDS Assoc. of America, 1998 rtf doc
• Mycoplasmal Infections in Blood from Patients with Chronic Fatigue Syndrome, Fibromyalgia Syndrome or Gulf War Illness, by G.L. Nicolson et al., International CFS Congress, Sydney, Australia, 1998 rtf doc

• New Treatments for Chronic Infections Found in CFS, Fibromyalgia Syndrome and Gulf War Illnesses, by Prof. Garth Nicolson, American Academy of Environmental Medicine Newsletter (Winter 1997) rtf doc
*PDF files can be opened by obtaining a free copy of Adobe Acrobat from:
http://www.adobe.com.../readstep2.html

Edited by vivolenta, 27 May 2008 - 15:57:04.

[silvias]

Ho trovato questo forum sulla cfs e fibromialgia...non so se è già stato segnalato mi pare di non averlo visto. ciao!

http://sunshine35446...u.com/directory

[vivolenta]

http://osiris.sunder...m/hooperpg1.htm

Prof. Malcolm Hooper: Collected Articles.


Vaccines & Gulf-War Syndrome | Letter to BMJ | Post Combat Syndromes | The Lancet: Health of UK Veterans
Meeting Highlights: NGV (Portsmouth 02/99) | Meeting Highlights: 2nd World Congress on CFS
Report of Hearings of GWS | Response to Medical Assessment Group | Letter to Editor OEM
Report on Gulf Health (12/98)| Mortality among Veterans | Response to RS Report on DU
Response to MRC Report into GWS

[Turchese]

University of sunderland.
non capiso perchè la home page è circa una scuola che si occupa di autismo.